A big thank you
We would like to thank all of those who have responded so enthusiastically to the establishment of AMOSS as a national surveillance system to study rare disorders of pregnancy.
We would also like to express our thanks to the Royal Australian and New Zealand College of Obstetricians and Gynaecologists (RANZCOG), Australian College of Midwives (ACM) and the Australian and New Zealand College of Anaesthetists (ANZCA) for endorsing AMOSS. We look forward to working with the colleges to further develop AMOSS.
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Inviting you to be a partner in AMOSS
Four steps to particpate
Monthly reporting on rare disorders will commence early in 2009. To establish AMOSS as a national reporting network into rare disorders of pregnancy, we would like to invite you to participate in this challenging but exciting initiative. You can be involved by:
- Nominating a person to report on selected conditions
- Reporting monthly on the conditions, using a negative reporting system
- Completing a data collection form for identified cases
- Providing feedback to us on the surveillance system
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To summarise:
- Conditions to be investigated from 2009 include:
- antenatal pulmonary embolus
- amniotic fluid embolism
- morbid obesity
- cardiac condition
- placenta accreta
- peripartum hysterectomy
- Disorders investigated will have an estimated incidence of less than 1:1000 births per year
- Incidence and case control studies will be conducted
- The average length of a study will be one year
- All findings will be published
- Non-identifiable patient data will be requested on reported cases
AMOSS will work in partnership with the Australian Paediatric Surveillance Unit (APSU) and the United Kingdom Obstetric Surveillance System (UKOSS). Both are well established, successful surveillance systems that have a proven methodology and have produced findings to inform clinical guidelines and prevention strategies.
Designing a web-based reporting system
We value your opinion
We would like to invite your input into the development of an interactive web-based reporting system (e.g. monthly reporting on rare conditions) to ensure that it is user friendly and of professional interest to you. Therefore we would like you to have your say on the content, usability and functions of the system.
For example:
- Is a web-based system preferable to paper based? Or would you prefer both options?
- Would you like to see the website hold additional information? If yes, what information?
- Any other comments?
If you would like to comment on the above please click here
Coming soon
A survey of maternity services
At the end of 2008 a national survey of maternity services will be conducted. A short electronic questionnaire will be sent to each maternity service in Australia. The aim of the survey is to characterise maternity services concentrating on: demographics, size of maternity unit, patient management protocols and models of care used. The specific objectives are to map the provision of maternity services across Australia, create peer groups based on service characteristics and, in the future, investigate the distribution and burden of cases identified through AMOSS surveillance.
We do value your time and input in this survey so we intend to keep the questionnaire short and user-friendly.
If you would like any further information on AMOSS please do not hesitate to contact Janice Biggs AMOSS project coordinator at Janice.biggs@unsw.edu.au or 02 9382 1068.
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AMOSS project coordinator
Ms Janice Biggs
Tel 02 9382 1068
Perinatal and Reproductive Epidemiology Research Unit
School of Women and Children’s Health
University of New South Wales
Level 2
McNevin Dickson Building
Randwick Hospital Campus
Randwick NSW 2031
 
AMOSS Investigators
Associate Professor Elizabeth Sullivan, Perinatal and Reproductive Epidemiology Research Unit, School of Women and Children’s Health, University of New South Wales
Professor David Ellwood, Canberra Clinical School, Australian National University
Professor Michael Peek, Nepean Clinical School, University of Sydney
Dr Marian Knight, National Perinatal Epidemiology Unit, University of Oxford, United Kingdom
Associate Professor Lisa Jackson Pulver, Muru Marri Indigenous Health Unit, School of Public Health and Community Medicine, University of New South Wales
Professor Caroline Homer, Faculty of Nursing, Midwifery and Health, University of Technology, Sydney
Ms Joanna Holt, Women’s Hospitals Australasia
Dr Yvonne Zurynski, Australian Paediatric Surveillance Unit, The Children's Hospital at Westmead, Sydney
Dr Claire McLintock, Department of Obstetrics and Gynaecology, University of Auckland, New Zealand
Associate Professor Tessa Ho, Office of Medical Education, Faculty of Medicine, University of Sydney
Dr Nolan McDonnell, Department of Anaesthesia and Pain Medicine, King Edward Memorial Hospital for Women, Western Australia
Professor Elizabeth Elliott, Australian Paediatric Surveillance Unit; The Children's Hospital at Westmead, Sydney
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